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Why More Pain Doesn't Always Mean More Damage in Multiple Sclerosis

One of the most common concerns people living with Multiple Sclerosis (MS) have is:


"My pain is worse today. Does that mean my MS is getting worse?"


The answer is not necessarily.


While new or worsening symptoms should always be discussed with your healthcare provider, pain intensity alone does not always indicate new inflammation, additional nerve damage, or disease progression.


This can be confusing because pain is often the body's warning system. With a sprained ankle or a cut, more pain usually means more tissue injury. However, MS affects the brain and spinal cord, where pain signals are processed, interpreted, and regulated. As a result, the relationship between pain and physical damage can be much more complex.


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Hydration & MS: Why Water Matters, and How to Find Your Balance

Living with MS often means juggling symptoms, fatigue, bladder issues, temperature sensitivity — and sometimes, hydration is the unsung factor influencing it all. Many people with MS avoid drinking enough water to reduce bathroom trips, but dehydration can worsen fatigue, cognition, and overall symptom control. A better approach is to hydrate smartly rather than limit fluids altogether.


✅ Hydration Correlates with Fatigue

  • A study of 50 women with MS found that those with low hydration status (urine specific gravity, USG ≥ 1.015) reported higher fatigue scores compared to well-hydrated participants. PubMed

  • The authors noted that limiting water intake (often due to bladder dysfunction) may worsen fatigue in MS. PubMed


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Dysphonia in Multiple Sclerosis: Understanding Voice Fatigue


TraXel | Voice Fatigue in MS
TraXel | Voice Fatigue in MS

Most people take their voice for granted. But for many people living with multiple sclerosis (MS), speaking for even short periods can feel exhausting. This voice weakness, strain, or loss of clarity is called dysphonia — and research suggests it affects 30–40% of people with MS at some stage of the disease.


Dysphonia is more than an inconvenience. It can interfere with communication, social interaction, and quality of life. Understanding why it happens — and what can help — is an important step in managing this hidden symptom.


Why Dysphonia Happens in MS


Speech is one of the most complex motor tasks humans perform. It requires tight coordination between the brain, cranial nerves, respiratory system, laryngeal muscles (voice box), and articulators (tongue, lips, soft palate). In MS, damage along any part of these pathways can disrupt this process.


The main contributors include:


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When MS brings Uncertainty : Holistic tools for Rising above disappointment



Hi Traxel Family,


My latest episode 15 is now! It talks about the difficulty of disappointment with MS progression and focusing on a positive mindset with simple tools. Again, I like to remind you to process all emotions and "sit" with it. This means to fully acknowledge your feelings without trying to fix it in that moment. Then let it go when you're ready. Self awareness is often an underrated skill and can be very helpful . It's ok to not be "on" with positivity all the time. My main goal is to help you refocus and get back on track when needed.


How do we do that?


  • Gratitude - enjoy the simple things in life, life is short

  • Self reflection and awareness with journaling , exercise or being out in nature


61 Views
Natalie Webb
Natalie Webb
Aug 05, 2025

🎗️

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The Truth About MS Pain: Not Always Where You Expect

Pain is one of the most underrecognized yet impactful symptoms of multiple sclerosis (MS). While the condition is often associated with numbness or mobility issues, research shows that more than 50–70% of people with MS experience pain during the course of their illness — and in many cases, it can become chronic.

Yet MS pain remains widely misunderstood — not only in where it occurs, but in how it feels, why it happens, and how it changes over time.


Why MS Causes Pain


TraXel | MS Pain

MS targets the central nervous system (CNS) — the brain and spinal cord. When the immune system mistakenly attacks the myelin sheath (the protective coating around nerve fibers), it disrupts normal nerve signaling. Depending on where these lesions occur and how they affect communication between nerves, different types of pain can emerge.


The three most common categories of MS-related pain include:


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Hydration’s Role in Managing MS Symptoms


TraXel | Hydration's Role in MS
TraXel | Hydration's Role in MS

For individuals living with Multiple Sclerosis (MS), managing symptoms effectively is a daily priority. While treatments and lifestyle adjustments often focus on medications and exercise, one of the most overlooked but essential components of symptom management is hydration. Proper water intake can help alleviate some of the most common MS symptoms, such as fatigue, cognitive dysfunction, and muscle cramps. In this article, we will explore the importance of hydration in MS management and how staying hydrated can improve overall well-being.


How Hydration Helps with MS Symptoms


  1. Fatigue Reduction Fatigue is one of the most disabling symptoms of MS, affecting up to 80% of patients. Dehydration can worsen this already overwhelming fatigue by reducing oxygen delivery to muscles, making even simple tasks feel exhausting. Proper hydration helps improve circulation, supporting energy levels and muscle function​(Multiple Sclerosis News Today, Cleveland Clinic).

  2. Preventing Muscle Cramps and Spasms MS patients frequently experience muscle cramps…


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Different Types of Pain in MS

Multiple Sclerosis (MS) is a chronic neurological condition that affects over 2.8 million people worldwide. It can lead to a wide range of symptoms, including various types of pain. Pain in MS is often under-recognized but can significantly impact the quality of life. According to the National Multiple Sclerosis Society, up to 55% of people with MS experience clinically significant pain at some point during their illness. Understanding and managing these different types of pain is crucial for improving the well-being of those affected by MS.


Different Types of Pain in MS
Different Types of Pain in MS

1- Neuropathic Pain


Description: Neuropathic pain is caused by nerve damage, resulting in sensations such as burning, stabbing, or electric shocks. This type of pain is often chronic and can be difficult to manage.


Common Areas: Legs, feet, arms, and hands.


2- Musculoskeletal Pain


462 Views
H. S.
Aug 01, 2024

Optic neuritis pain can be extremely debilitating 😔

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Understanding Lhermitte’s Sign in MS

Lhermitte’s sign, also known as Lhermitte’s phenomenon or the "barber chair phenomenon," is a distinctive neurological symptom often associated with multiple sclerosis (MS). It manifests as a sudden, brief, and intense electric shock-like sensation that travels down the spine and into the limbs when the neck is flexed forward. This symptom is relatively common in MS, affecting approximately 33% to 40% of individuals with the condition​ (MS Focus)​​ (BMJ Journals)​. Understanding Lhermitte’s sign is crucial for individuals with MS, as it provides insight into the underlying neurological disruptions caused by the disease and offers pathways for effective management.


What Causes Lhermitte’s Sign?


Lhermitte’s Sign & MS
Lhermitte’s Sign & MS
  1. Demyelination: In MS, Lhermitte’s sign is caused by demyelination, which is the loss of the protective myelin sheath around nerves in the spinal cord. This demyelination disrupts normal nerve function, leading to the characteristic shock-like sensations. Demyelination in MS can result from the immune system mistakenly attacking the myelin sheath, causing…


207 Views
Colton Wexler
Jul 17, 2024

This is so true! The sensation is sudden and very painful. Thanks for sharing!

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Hormones and MS: Understanding the Connection

Multiple Sclerosis (MS) is a complex and often unpredictable disease that affects the central nervous system. Despite extensive research, the exact cause of MS remains unknown. However, it's evident that hormones play a significant role in the progression and management of this condition. In this article, we explore how hormonal changes impact MS symptoms and disease progression, and discuss potential therapeutic approaches involving hormone therapy.


Hormonal Changes and MS


Hormonal changes can significantly impact the progression and symptoms of Multiple Sclerosis (MS). Here are key areas where these effects are most evident:


Pregnancy and MS


TraXel | MS & Hormonal Changes
TraXel | MS & Hormonal Changes

One of the most well-documented connections between hormones and MS is the effect of pregnancy. Many women with MS experience a reduction in disease activity during pregnancy, particularly in the third trimester. This is believed to be due to the high levels of pregnancy-related hormones, such as estrogen and progesterone, which may have protective effects…


245 Views
Leah
Leah
Jun 09, 2024

Yes, please!

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